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Orphan Drug Act
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#	Item
51	Canadian Organization for Rare Disorders Canada’s Orphan Drug Policy Learning from the Best Introduction Canadians suffering from rare debilitating or life threatening diseases need an Orphan Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2009-03-24 11:08:15 Pharmaceuticals policy Drug discovery Orphan drug Orphan Drug Act Rare disease Pharmaceutical industry Canadian Organization for Rare Disorders European Organization for Rare Diseases Food and Drug Administration Pharmaceutical sciences Health Pharmacology
52	PRESS RELEASE Contact: Brad Crittenden President, Canadian Association of Pompe Email: [removed] For Immediate Release Add to Reading List Source URL: www.raredisorders.ca Language: English Lysosomal storage diseases Glycogen storage disease type II Hepatology Durhane Wong-Rieger Orphan drug Orphan Drug Act Neglected diseases Rieger Health Medicine Rare diseases
53	Rarity And Innovation 1 SLIDE 2 Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2009-04-08 12:51:50 Clinical research Drug discovery Orphan drug Pharmaceuticals policy Rare disease Orphan Drug Act National Institute for Health and Clinical Excellence Food and Drug Administration Health Pharmaceutical sciences Clinical pharmacology
54	July 25, 2013 The Honorable Max Baucus, Chairman U.S. Senate Committee on Finance 219 Dirksen Senate Office Building Washington, D.C[removed] Add to Reading List Source URL: www.rarediseases.org Language: English - Date: 2013-07-31 09:14:47 Drug discovery Orphan drug Pharmaceuticals policy Rare disease Orphan Drug Act Pharmaceutical industry National Organization for Rare Disorders Max Baucus Food and Drug Administration Pharmaceutical sciences Health Pharmacology
55	July 25, 2014 The Honorable Fred Upton, Chairman U.S. House of Representatives Committee on Energy & Commerce 2125 Rayburn House Office Building Add to Reading List Source URL: rarediseases.org Language: English - Date: 2014-07-28 12:01:38 Food and Drug Administration Pharmaceuticals policy Therapeutics United States Public Health Service Pharmaceutical industry Off-label use Methadone Prescription Drug User Fee Act Orphan drug Pharmacology Pharmaceutical sciences Clinical research
56	Presented on: December 13, 2012 DRAFT FOR DISCUSSION ONLY Add to Reading List Source URL: www.orpha.net Language: English - Date: 2014-12-02 15:36:13 Pharmacology Health Drug discovery Clinical research Orphan drug European Medicines Agency Food and Drug Administration Marketing authorization Food and Drugs Act Pharmaceutical sciences Pharmaceuticals policy Pharmaceutical industry
57	August 6, 2013 The Honorable Patrick J. Toomey 248 Russell Senate Office Building Washington, DC[removed]Dear Senator Toomey: On behalf of the 30 million men, women and children in the U.S. affected by the estimated 7,300 Add to Reading List Source URL: rarediseases.org Language: English - Date: 2013-09-26 15:14:25 Pharmaceuticals policy Pharmacology Rare disease National Organization for Rare Disorders Pharmaceutical sciences Pharmaceutical drug Patient Protection and Affordable Care Act Law Orphan Drug Act Health Drug discovery Orphan drug
58	Drug Name Presentation Title Add to Reading List Source URL: www.fda.gov Language: English Medicine Food law Pharmaceutical sciences Pharmacology United States Public Health Service Orphan drug Federal Food Drug and Cosmetic Act Center for Drug Evaluation and Research Food and Drug Administration Amendments Act Food and Drug Administration Pharmaceuticals policy Health
59	Lettre_AFM31- fevrier07.qxp Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2012-02-20 08:19:30 European Organization for Rare Diseases Pharmaceuticals policy Rare disease Orphan drug Orphan Drug Act European Medicines Agency Pharmaceutical industry Greek Alliance of Rare Diseases Rare Disease Day Health Pharmaceutical sciences Pharmacology
60	August 30, 2013 The Honorable David B. McKinley 412 Cannon House Office Building Washington, DC[removed]Dear Mr. McKinley: On behalf of the 30 million men, women and children in the U.S. affected by the estimated 7,300 kno Add to Reading List Source URL: rarediseases.org Language: English - Date: 2013-09-26 15:17:12 Health Pharmaceutical sciences Drug discovery Orphan drug Clinical research Rare disease Biologic Multitier architecture Orphan Drug Act Pharmacology Pharmaceuticals policy Health economics